Psychosocial burden of caregivers of children attending Sickle Cell Clinic, Lagos,
Fetuga Adedoyin1,&, Mobolanle Balogun2, Kofoworola Odeyemi2, Muhammad Balogun1, Patrick Nguku1, Olufemi Ajumobi1
1Nigeria Field Epidemiology and Laboratory Training Programme, Abuja, Nigeria, 2Department of Community Health and Primary Care, College of Medicine, University of Lagos, Nigeria
Fetuga Adedoyin, Nigeria Field Epidemiology and Laboratory Training Programme, Asokoro, Abuja, Nigeria
Sickle Cell Disease (SCD) is the most common genetic disorder amongst the
black people and one of the major chronic non-communicable diseases affecting
children. Nigeria accounts for more than 100,000 new births annually. The impact
on the family is worse in developing countries because of inadequate social
welfare and poor access to health care services. Our objectives were to determine
the knowledge and attitude of caregivers of children with SCD towards the disease
and the associated psychosocial burden.
we conducted a cross-sectional study. Using a standardized SCD burden interview questionnaire, we interviewed all consecutive caregivers who presented for clinic appointment in October and November 2014 and assessed the impact on family’s finances, activities, harmony and coping ability. Eligible caregivers were those who had lived with the child for at least one year as primary caregivers. The child must have been admitted at least twice for sickle cell crisis but in steady state at the time of interview.
we interviewed 216 caregivers. Overall, 160 (74.1%) had good knowledge, 208 (96.3%) had positive attitude towards SCD, 97 (91.2%) had lost income or financial benefits due to time spent caring for child; 55 (25.5%) had taken loan on account of child’s illness, 151 (70%) had neglected other family members due to child’s illness, 140 (64.8%) reported threats of separation or divorce and 173 (80.0%) reported having episodes of depression and feeling sorrowful. Having good knowledge of SCD was associated with family harmony (Odds ratio = 2.8, 95% confidence interval: 1.6 - 5.1).
caregivers of children with SCD experienced high psychosocial burden. This is probably due to opportunity cost of caring for the child with SCD. We therefore recommend that social welfare be provided for the caregivers, and care of these children be subsidized.
Nigeria CDC/Nigeria Field Epidemiology and Laboratory Training Programme 2<sup>nd</sup> Annual Scientific Conference (Abuja)
To create a platform for epidemiologists and public health physicians to share their scientific works, NCDC/NFELTP organized the 2nd annual scientific conference with the theme "strengthening one health through field epidemiology training" at Transcorp Hilton Hotel, Abuja, Nigeria from July 5-7, 2017. The objectives of the conference were to provide residents and graduates a forum to share findings from their field activities; provide training opportunity for trainees on scientific communication; provide an opportunity for epidemiological networking as well as create a forum to discuss pertinent public health issues. In attendance were dignitaries from the United States Centers for Disease Control and Prevention (CDC), USAID, WHO, Africa CDC, Ministries Departments and Agencies, University officials and other implementing partners. With the current rise in zoonotic diseases, the conference also featured a two-day pre-conference workshop on One Health which prioritized zoonotic infectious diseases in Nigeria using standardized prioritization methods. A second workshop focused on antimicrobial resistance. There were 38 oral presentations, 60 poster presentations and 2 plenary sessions. The presentations covered various sub-themes ranging from outbreak investigations, case management, health system strengthening, vaccine preventable diseases, communicable diseases and surveillance. The conference featured a National Night and climaxed with awards to outstanding presenters.
Dates: 05 Jul 17 - 07 Jul 17
Venue: Transcorp Hilton Hotel
Organizers: Nigeria Centre for Disease Control / Nigeria Field Epidemiology and Laboratory Training Programme
Contact person: Dr Patrick Nguku (firstname.lastname@example.org)